Just Not Feeling Well

I can't seem to put my finger on what is wrong; however, I have not been feeling well at all for the last few weeks.  I know that it is most likely something related to my Ehlers-Danlos Syndrome but what exactly is going on eludes me.  I have been experiencing a big increase in the horrible muscle and joint aches along with the bouts of inability to think straight and extreme dizziness.  I also am having an increase in GI issues and the literally mind numbing headaches.  I don't think any of it is food related as I have been hyper vigilant as always with ensuring that I don't have any of my off limits foods.  The one thing that I am sure about is that I am very very tired of being unwell.  I want off this merry go round and can't seem to find a successful way to achieve that desire.

In other news, I have fired my Rheumatologist only she doesn't know it yet.  They called a month of so to let me know that she was unable to keep my last appointment and I just have not rescheduled it.  I honestly do not have any plans to reschedule... I finally was able to obtain a copy of a fairly serious and expensive lab test that she had done almost a year ago.  It is called an ANA panel if any of you are familiar with the blood test.  She had told me that everything was fine on the results.  She lied.  Well when I finally got a copy I found out that it was anything but fine.  I currently am trying to find a doctor that really can interpret the results and what they mean.  However, even a layperson knows that it isn't good when things read positive and are listed in the abnormal range.  Based on my research I am trying very hard not to jump to any conclusions as there are a list of things that are possible with the results I have.  Lets all just hope that it is the EDS showing up and not something more in addition which appears to be highly probable. 

Just in case someone actually knows how to interpret the test results... The test was a ANA 12 Plus Profile.
Here are my out of tolerance numbers (There is a lot more data on the results).
Anti-Nuclear AB = Abnormal - Positive & Normal Range - Negative
ANA Titer = Abnormal - 1:40
ANA Pattern = Speckled
ANA Titer = Abnormal - 1:40
ANA Pattern = Nucleolar
Complement C3 = 206

Dislocations?

I live my daily life with my joints dislocating quite often.  I have to adjust how I do things in order to help minimize the amount of dislocations I suffer.  I go snap, crackle and pop quite often!  My joint noises shock people quite a bit but to me they are just part of life.  Does it hurt when it happens?  YES!!  But I don't have a choice other than to just try to put it back and keep going.

One of the most difficult things about having Ehlers Danlos Syndrome (EDS) isn't the dislocations.  The most difficult part is the constant incredible pain and constant fatigue.  The second most difficult thing is the lack of understanding other people have towards me and my EDS.  People look at me and say that there isn't anything wrong with me because they can't see it.  Well, yes for the most part EDS is an invisible disease.  But just because you can't see it doesn't mean that it isn't there.

I wish that people weren't so cruel and lacking in understanding and compassion.