Dislocations?

I live my daily life with my joints dislocating quite often.  I have to adjust how I do things in order to help minimize the amount of dislocations I suffer.  I go snap, crackle and pop quite often!  My joint noises shock people quite a bit but to me they are just part of life.  Does it hurt when it happens?  YES!!  But I don't have a choice other than to just try to put it back and keep going.

One of the most difficult things about having Ehlers Danlos Syndrome (EDS) isn't the dislocations.  The most difficult part is the constant incredible pain and constant fatigue.  The second most difficult thing is the lack of understanding other people have towards me and my EDS.  People look at me and say that there isn't anything wrong with me because they can't see it.  Well, yes for the most part EDS is an invisible disease.  But just because you can't see it doesn't mean that it isn't there.

I wish that people weren't so cruel and lacking in understanding and compassion.