Monday, October 25, 2010

First Snow

Today we had the first snow of the season... I can not believe that it is already that time of year!!  The snow has been falling all day and through the night with very crazy winds.  It seems like it went from the lovely Fall weather that we had been having to the dreary cold and miserableness of Winter overnight here.  I keep hoping that this really is not the start of Winter here in earnest, but I think that it most likely is indeed.  My garden is most likely done for too :(  I was hoping that the carrots, beets, and onions might have made something... I guess once the snow melts - if the snow melts in the next few days I will go and check.  I just hope that the ground isn't frozen solid!  If it is then there is no hope of me pulling anything up to check!

Monday, October 4, 2010

Just Not Feeling Well

I can't seem to put my finger on what is wrong; however, I have not been feeling well at all for the last few weeks.  I know that it is most likely something related to my Ehlers-Danlos Syndrome but what exactly is going on eludes me.  I have been experiencing a big increase in the horrible muscle and joint aches along with the bouts of inability to think straight and extreme dizziness.  I also am having an increase in GI issues and the literally mind numbing headaches.  I don't think any of it is food related as I have been hyper vigilant as always with ensuring that I don't have any of my off limits foods.  The one thing that I am sure about is that I am very very tired of being unwell.  I want off this merry go round and can't seem to find a successful way to achieve that desire.

In other news, I have fired my Rheumatologist only she doesn't know it yet.  They called a month of so to let me know that she was unable to keep my last appointment and I just have not rescheduled it.  I honestly do not have any plans to reschedule... I finally was able to obtain a copy of a fairly serious and expensive lab test that she had done almost a year ago.  It is called an ANA panel if any of you are familiar with the blood test.  She had told me that everything was fine on the results.  She lied.  Well when I finally got a copy I found out that it was anything but fine.  I currently am trying to find a doctor that really can interpret the results and what they mean.  However, even a layperson knows that it isn't good when things read positive and are listed in the abnormal range.  Based on my research I am trying very hard not to jump to any conclusions as there are a list of things that are possible with the results I have.  Lets all just hope that it is the EDS showing up and not something more in addition which appears to be highly probable. 

Just in case someone actually knows how to interpret the test results... The test was a ANA 12 Plus Profile.
Here are my out of tolerance numbers (There is a lot more data on the results).
Anti-Nuclear AB = Abnormal - Positive & Normal Range - Negative
ANA Titer = Abnormal - 1:40
ANA Pattern = Speckled
ANA Titer = Abnormal - 1:40
ANA Pattern = Nucleolar
Complement C3 = 206