Wednesday, December 14, 2011

Latest Medical Update - Hospitalization

I am so happy to be home.  I went to the ER on Saturday morning because the pain in my abdomen had changed.  I only put up with a months worth of horrific nausea, vomiting, constipation, and pain before breaking down and going in.
I had a horrible experience in the ER and then the hospital proper.  They ended up overdosing me on medications which led to me becoming basically unresponsive with a severely low heart rate.  This led to them having to give me narcan which gained me an admission to the hospital.  I was there from about 10 am Saturday until about 8 pm Tuesday when I had reached my breaking point.  I received great nursing care; however, the lack of care and desire to help from the doctors was just too much to bear.  It felt like they did not know about Ehlers-Danlos Syndrome and were not willing to listen to what I do know about my illness.  They did not want to consider anything other than common reasons for my horrific abdominal pain.  Besides they were not helping me feel any better so why should I continue to stay.  They were monitoring my heart rate and besides that the only thing that was really being accomplished was hydration via IV.  Because of the earlier issue in the ER they would only give me tylenol for the excruciating pain I was in.  I felt like I had to fight to get the tests done that I felt were necessary.  I had a CT scan, chest x-ray, enema, upper endoscopy, colonoscopy, echo cardiogram, and a multitude of blood work.  I don't feel like I was given the whole story as to the results of some of the tests and blood work.  The only diagnosis given during my stay was gastritis.  I actually had a breakdown which resulted in the echo cardiogram and some vital information, yet still no treatment plan and no referrals...
We still don't really know what is wrong or how to fix it, but I am back at home finally and feeling worse than when I left to go to the ER.


  1. I am so sorry for your experience. Health care professionals who don't listen don't belong in health care

  2. OMG, haven't seen your blog is so long. Was dropping and found myself here. Am so sorry to learn of trials. I do hope things are better now.

  3. It's been almost 6 months since you wrote this post, and I'm wondering how you are doing now. I sure hope you are feeling better...