Friday, May 7, 2010

May Already?

I can not believe that 1/3 of 2010 has already come and gone... Where has the time gone??

EMT class finishes up at the end of the month.  It all seems to still be going OK so hopefully no problems with me getting my card.  I start my mandatory ER time next week.  I will be doing two 12 hour shifts.  I am really hoping that they go smoothly!

Still not feeling great.  Actually at this point I think I would settle for just not feeling downright crappy.  I have been running an unexplained low grade fever for over a week.  I finish my latest round of antibiotics this evening though so hopefully getting off of them helps improve how I feel.  Sad isn't it that everything that "cures" something also makes me more miserable in some other way.  Hopefully this latest round of antibiotics did indeed kick that respiratory junk out, but I am not holding my breath that it did.  The more I study up on Ehlers-Danlos Syndrome the more I realize just how many of my health problems are related.  Connective tissue is everywhere from holding together joints, to skin, to nerves, to all  of the organs especially lungs and digestive tract.  Realizing that because my connective tissue is defective makes my body defective doesn't make the pain any less but it does help me to understand that this isn't something that I can control which opens a whole new can of worms to deal with emotionally of course. 

I have an appointment to see the Rheumatologist on the 14th.  I am debating whether or not to cancel.  In a way I want to go and to just spill everything out to her, but in another way I don't want to go because she doesn't listen to me or really do anything that helps.  She shoots down every idea that I have found based on my research and just throws another medication at me that makes me worse.  I need for her to realize just how bad things are getting...

In other news we had snow again last evening... I don't think that Spring is coming to Wyoming... I am beginning to wonder if Summer is ever going to come either!


  1. I will have to read up on that illness. Sounds painful.
    Hope your EMT shifts go well.
    Due to the frost some of our alfalfa in WY froze off. :(

  2. I went through four rheumys before I found one that gave more than just "lip service" to Ehlers Danlos and really knew how bad it can be on a daily basis. She also REALLY listened and was receptive to my ideas based on research I had done. Find a new rheumy. Interview them during the first visit and if you don't like what you get (time, understanding, suitable meds, etc.) then go to another one and keep going till you find one that works out! I had to drive an hour away to find this one. And she's worth it.

    Good luck!

  3. Good luck with your ER time. That sounds really challenging. I like Sherlock's suggestion of finding another doctor (if you can). You really need to have confidence in the doctor you are seeing and it doesn't sound like you are feeling extremely confident.

    Good luck!

  4. I completely understand your frustration! I went through this recently with a surgeon who just wouldn't listen and wanted to run test after test on me. I never came to any conclusion with him and finally got some help from my gynecologist. Yikes, it is scary what doctors don't know! I know you are limited with opportunities, but I would try to find a new doctor if you can.

    I hope spring comes one of these days to you! I'm sure that is wrecking havoc on your mindset too.

  5. Hi, my name is Pete, I'm writing on behalf of Shelterwood--a licensed residential teen treatment facility with two locations in Missouri. Would you be interested in including a link to as a resource on your site? We would be open to a link exchange as well if that is something you might be interested in.

    We are located on the web at Look forward to hearing from you.


    Pete -

  6. sorry to hear that you are still feeling crummy, but glad the EMT course is almost over. We have still had a lot of cold here also...still icy in the mornings up until this week. Today we finally had sun and broke 80 degrees for the first time this year. We are expecting more rain and thunderstorms for the next few days. I haven't been able to get my garden plants in the ground yet. I hope you see spring and/or summer weather soon!